THAI FH REGISTRY

Identifying and treating patients with FH, just like what you are doing, is crucially important, but your contribution can go beyond that. Being a part of Thai FH registry is one practical way to improve care for FH patients and their families.

What is Thai FH registry?

The Thai FH registry is a database where physicians/researchers collected medical information from FH patients, in order to gather more understanding of the disease and to provide the best practice to those living with FH.

Thai FH registry was started in August 2018 after Thailand officially joined The EAS Studies Collaboration (FHSC) , which is an
international secure warehouse of FH Data, collected and merged from
all the countries included in the global network (currently 70
countries). This global registry is the first example of Big Data on FH currently available.

Why a national
FH registry?

The goal of the FH registry is to improve the detection, management and care of
individuals and families with
FH in Thailand

The Thai FH Registry and Study Group support to

  • Gather all FH patient records onto one database so that the information can be analyzed effectively.
  • Identify FH distribution, diagnosis and treatment outcomes from a multi-disciplinary group of physicians and researchers.
  • Aid health planning and the development of the optimal treatment options.

Joining the Thai FH Study Group,
physicians and researchers can

  • Get access to
    information and
    educational materials
    on FH

  • Be a part of a broad
    specialist
    collaboration

  • Share and learn
    from other experts

Collaborating
institutes

The Thai FH registry is a collaborative effort among endocrinologists and cardiologists, taking care of FH subjects in Thailand.

The central administrative site is at King Chulalongkorn Memorial Hospital in Bangkok. The network is now expanded to more than 21 hospitals nationwide.

Thai FH registry hopes to expand to various healthcare facilities across the country very soon.

What to do
and how to join?

The study process will
run in 4 steps
  • 1

    Case detection

  • 2

    History review and
    patient engagement

  • 3

    Blood collection
    and transfer

  • 4

    Deep
    phenotyping studies

You can now set up your clinics as
a physical registration site and be a part of the network.

For inquiries and documents (CRF, information sheet and datasheet), please contact the project office via